We have a few books we think you would find really helpful and feature in our training videos.
If you only buy three things then pls get
Alzheimer's Society 5 mins Film on how Memory & Feeling Work - this is AWESOME!
"The Bookcase Analogy"
Great Site for Video's and Easy Read Information
Zeez Sleep Pebble - improving sleep
The Zeez Sleep Pebble is designed to prompt our brain to relax and to sleep deeply,
at the right time in our sleep cycles.
Lack of deep sleep is also one of the side effects of dementia.
Improving sleep can make a big difference. We like it!
Singing Groups for people with Dementia - Diana Kerr
WHO Gudelines on PRN Medication for Pain Relief
University of Stirling - Kitchen Do's and Don't on Video 6
DSDC Virtual Care Home Examples - really really helpful!
Jenny's Diary - resource to support conversations about Dementia
with people with a Learning Disability - really marvellous. I highly recommend this!
Karen Watchman - University of Stirling
Great resources and further training. Email Karen - she is a greatly respected expert in this field.
Supporting Derek DVD and Book
Disability and Dementia
Also available in Dutch, Chinese and Norwegian
Philosophy of Care
Karen Dodd DVD
Down’s Syndrome Association
Here is the website email or call them for a copy
Home for Good Paper
Download at the bottom of the page
Good general read with loads of coping ideas and real life people examples
Channel 4 News with Diana Kerr interview
Down's Syndrome and Dementia Workbook - Practitioners Guide
What is Dementia?
For those who live in a care home and need to understand what is happening to their friend
Lots of pics
GP's Office Poster
Join us in getting this to every Dr’s office in the World!
Down's Syndrome and Dementia Workbook for Staff
This is designed to go with each person where ever they move to and each and every DS person should have one! It has pages for staff to write notes and is really excellent. An invaluable investment.
Pls call DSA on UK Number 0333 1212 300 and they will send you a copy for £15
References used and from the Training Video's on this Website
British Psychological Society / Royal College of Psychiatrists (2009) Dementia and People with Learning Disabilities. Guidance on the assessment, diagnosis, treatment and support of people with learning disabilities who develop dementia. British Psychological Society: Leicester.
Buijssen, H. (2005) The Simplicity of Dementia. London: Jessica Kingsley
Carter, G. & Jancar, J. (1983). Mortality in the mentally handicapped: a 50 year survey at the Stoke Park group of
hospitals (1930-1980). Journal of Mental Deficiency Research, 27, 143-156.
Cooper, S.A. (1997a). High prevalence of dementia among people with learning disabilities not attributable to Down’s syndrome. Psychological Medicine, 27, 609-616.
Cooper, S.A. (1997b). A population-based health survey of maladaptive behaviours associated with dementia in elderly people with learning disabilities. Journal of Intellectual Disability Research, 41, 481-487.
Cooper, S.A. (1997c). Deficient health and social services for elderly people with learning disabilities. Journal of Intellectual Disability Research, 41, 331-338.
Dawson p ( 1998 ) cognitively impaired residents receive less pain medication than non- cognitivley impaired residents’ perspectives vol 22 no 4 pp 16-17
Dodd, K., Kerr, D. & Fern, S. (2006) Down’s Syndrome and Dementia Workbook for Carers. Teddington: Down’s Syndrome Association
Dodd, K., Turk. V., & Christmas, M. (2009) Resource Pack for carers of adults with Down’s Syndrome and dementia. Kidderminster: BILD Publications
Dodd, K., Turk, V. & Christmas, M. (2005) The Journey of Life: a booklet about how people change from babies to older people. Kidderminster: BILD Publications
Dodd, K., Turk, V. & Christmas, M. (2005) Booklet for Friends of People with Down’s Syndrome and Dementia. Kidderminster: BILD Publications
Dodd, K., Turk, V. & Christmas, M. (2005) Understanding Dementia - information for people with learning disabilities. Kidderminster: BILD Publications
Fray M (2000) Caring for Kathleen. Kidderminster: BILD Publications
Horgas A and Tsai P (1998) ‘analgesic drug prescription and use in cognitively impaired nursing home residents’ nursing research Vol 47 no 4 p 235
Janicki MP & Dalton AJ (1999a) Dementia, Aging and Intellectual Disabilities: A handbook. Philadelphia: Brunner/Mazel.
Janicki MP & Dalton AJ (1999b) Dementia and public policy considerations. In: MP Janicki and AJ Dalton (Eds) Dementia, Aging and Intellectual Disabilities: A handbook. New York: Taylor and Francis.
Janicki MP, Dalton AJ, Henderson M & Davidson PW (1999) Mortality and morbidity among older adults with intellectual disabilities: health services considerations. Disability and Rehabilitation. 21 284–294.
Janicki, M.P., McCallion, P., & Dalton, A.J. Supporting People with Dementia in Community Settings In M.P. Janicki & A.F. Ansello (Eds.), Community Supports for Aging Adults with Lifelong Disabilities. pp. 387-413 Baltimore, Maryland: Paul H. Brookes Publishing (2000)
Abstract: Due to the "greying” of the nation’s population, dementia associated with Alzheimer’s disease and other causes, has become another challenge for providers of services to adults with intellectual disabilities. In this book chapter, the authors explore the factors, policies, and support structures that can help agencies provide continued "aging-in-place” dementia-capable care, develop "in- place progression” dementia specific programs, or chose alternative care settings. It also explores some features of dementia-related behaviors that may need to be taken into account in program design and makes suggestions for staff training and planning for dementia programs.
Kerr D (1997) Down’s Syndrome and Dementia: A Practitioner’s guide. Birmingham: Venture Press
Kerr D (2007) Understanding Learning Disability and Dementia Effective Interventions. Jessica Kingsley, London.
Kerr, D. & Wilkinson, H. (2005) In the Know. Implementing Good Practice. Brighton: Pavilion Publishing
Kerr D, Wilkinson H and Cunningham C (2006). Responding to the pain experiences of people with a learning difficulty and dementia. Joseph Rowntree Foundation.
Main C. And Spanswick C.2000. Pain management. An interdisciplinary approach. Edinburgh: Churchill Livingstone
Morrison R and Sui AL ( 2000)’ A comparison of pain and its treatment in advanced dementia and the cognitively intact patients with hip fracture’ journal of pain and symptom management Vol 19 no 4 pp 240 –8
Prasher V ( 1995)Age- Specific prevalence;Thyroid Dysfunction and depressive Symptomology in Adults with Down’s syndrome and dementia. International Journal of geriatric psychiatry 10,25-31
Tsai, p and Chang J (2004) ‘assessment of pain in elders with dementia’ Medsurg nursing Vol 13, no 6 pp364-90